This blog has come about out of the necessity to be understood; to try and illustrate, through words, the reality my daughter and I live. This is not an up beat blog. No cheerful stiff upper lip encouragement, or hopeful dangling carrots here. This is a chronicle of our journey through the hellish fire that is our lives. In writing this I wish to both illuminate and educate, as well as make available the latest in medical research and therapies. This is not a blog simply about Ehlers-Danlos Hypermobility Type, but also about the multiple systemic diseases and conditions that go along with it. No, I do not have the answers, nor the cure, but I do have extensive experience with not only being chronically ill myself, but raising a chronically ill child at the same time, mostly on my own.

Thursday, March 24, 2016

Sometimes living is so damned hard for me ...

Sometimes living is so damned hard for me. Sometimes .... actually quite often .... okay, every day ....... I loose hope, I dread the future, I contemplate leaving this mortal coil, this day in and day out of living life under physical and mental siege, but then something like this comes a long. And even though it is about death, dying, and loosing a loved one, it is also about not loosing sight that life, in general, and the world we live on, is beautiful ...... and maybe, just maybe I will stick around a bit longer and enjoy it while and how ever I can ....... 

 https://www.facebook.com/humanthemovie/videos/468301476675049/?fref=nf

https://www.facebook.com/humanthemovie/videos/468301476675049/?fref=nf
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