This blog has come about out of the necessity to be understood; to try and illustrate, through words, the reality my daughter and I live. This is not an up beat blog. No cheerful stiff upper lip encouragement, or hopeful dangling carrots here. This is a chronicle of our journey through the hellish fire that is our lives. In writing this I wish to both illuminate and educate, as well as make available the latest in medical research and therapies. This is not a blog simply about Ehlers-Danlos Hypermobility Type, but also about the multiple systemic diseases and conditions that go along with it. No, I do not have the answers, nor the cure, but I do have extensive experience with not only being chronically ill myself, but raising a chronically ill child at the same time, mostly on my own.

Twisted Torso - Self Portrait

"Twisted Torso", the background image for this blog, is an oil painting of mine that is a self portrait of what it feels like to be chronically ill and in constant pain all over and inside your body. Original drawing was done in 1982, painting was done 1991-92. This artwork is copyright protected by copyright holder and original artist Lilith Berkana De' Anu, and may not be used for any purpose unless authorized by MS De' Anu

VIEW & PURCHASE MY ARTWORK

You can view and purchase Twisted Torso and copies of my other art work at: My Society6 Store

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