This blog has come about out of the necessity to be understood; to try and illustrate, through words, the reality my daughter and I live. This is not an up beat blog. No cheerful stiff upper lip encouragement, or hopeful dangling carrots here. This is a chronicle of our journey through the hellish fire that is our lives. In writing this I wish to both illuminate and educate, as well as make available the latest in medical research and therapies. This is not a blog simply about Ehlers-Danlos Hypermobility Type, but also about the multiple systemic diseases and conditions that go along with it. No, I do not have the answers, nor the cure, but I do have extensive experience with not only being chronically ill myself, but raising a chronically ill child at the same time, mostly on my own.

Tuesday, October 13, 2015

Update on the last two lists ......

So, just a quick update on how the final two lists are going. Though they are taking 10Xs as long as I had thought they would, the processes has been a wonderful learning experience. I have discovered new research on several of the diseases we have had for decades, and for which we thought were thoroughly understood. New research has once again validated our experiences, and suspicions, concerning the probable autoimmune links to eczema, asthma, and our allergies, as well as new info concerning hypothyroid disease, and Celiac.

So please bare with me once more as I gather all this information together in a coherent form, for this blog is not just about the lists, or how it all has and does affect us, but also about in depth information, and new research and resources. That takes time and a great deal of writing.

See you soon ......

Lilith
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