This blog has come about out of the necessity to be understood; to try and illustrate, through words, the reality my daughter and I live. This is not an up beat blog. No cheerful stiff upper lip encouragement, or hopeful dangling carrots here. This is a chronicle of our journey through the hellish fire that is our lives. In writing this I wish to both illuminate and educate, as well as make available the latest in medical research and therapies. This is not a blog simply about Ehlers-Danlos Hypermobility Type, but also about the multiple systemic diseases and conditions that go along with it. No, I do not have the answers, nor the cure, but I do have extensive experience with not only being chronically ill myself, but raising a chronically ill child at the same time, mostly on my own.

Sunday, December 20, 2015

Happy Holidays!

Happy Holidays everyone. I have taken a hiatus from posting and finishing part 2 of the secondary list for the holidays. Not enough spoons (Spoon Theory), and this final part delves deeply into genetics, and bio-chemistry, both heavy subjects. I plan on getting back to writing after the first of the year, but wanted to touch base with you all, be you one or many, and wish you a Happy Holidays and New Year.

Lilith
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